A list to mark two years
Podcasts, videos, articles and more
Today, to mark the second anniversary of Neve’s death, I am sharing a selection of Neve’s ripples plus some coming events, websites, books, podcasts, videos and a variety of articles and papers. The links I am sharing here are to writing, speaking, and art that I have found thought provoking or resonant. Including them here is not an endorsement of the website, the author or the topic. If you spot any issues or broken links, please contact me.
I have also shared some thoughts about today.
Neve’s ripples
(find out more about Neve’s ripples or to share your own)
Embedding children’s hospices in the UK’s networked care approach (EAPC Reference Group Children & Young People)
Dr Kathryn Mannix's Visit to New Zealand (see slide in background of main picture)
Oxfordshire Children’s Community Nursing Team win July’s Exceptional People Team Award and Oxfordshire NHS Team praised for supporting dying child
Coming events
Sawubona (We See You): From Present Practice to Future Directions in Palliative Care Equity Research Conference (6 May 2025)
NIHR ARCs national webinars: Creative arts to improve wellbeing (7 May, 11 June, 9 July 2025)
Black Baby Loss Awareness Week - Annual Webinar (13 May 2025)
Websites
My Dying Child The experience of two parents navigating the last months of their son’s life
Br[eat]he by Rohini Contractor Transforming the art and science of paediatric care through the prism of mother, writer, artist, human and advocate
Paediatric Palliative Care Educate’s list of Recommended Resources
Books
Love After Death, Bereaved Parents and Their Continuing Bonds by Catherine Seigal
When the dust settles by Lucy Easthope
Soldier Sailor by Claire Kilroy
A little life by Hanya Yanagihara
I am, I am, I am by Maggie O'Farrell
Blue Sisters by Coco Mellors
Empire of Pain, The Secret History of the Sackler Dynasty by Patrick Radden Keefe
The Secret Lives of Colour by Kassia St. Clair
Podcasts
Videos
Palliative Care- shifting the focus from equality to equity by Dr Sabrina Bajwah
What losing a child taught a mom about death stories by J.J. Duncan
Why stories of trauma don’t create change by Nathalie McDermott
A Doctor’s Story of Reconnecting to His Humanity by Anthony Chin-Quee
Because We Care, Recommendations from siblings of children with life-limiting conditions by Grace, Hollie, King Bob, Rose, Sophie, Wee Cillian and Zoe
Articles and papers
If My Dying Daughter Could Face Her Mortality, Why Couldn’t the Rest of Us? by Sarah Wildman (if this link takes you to a paywalled version, try here or here)
Nadia’s story by Ana Toderovic
Relieve the suffering: palliative care for the next decade by Rosa, William E et al.
Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals by Walshe, C., Dunleavy, L., Preston, N. et al.
Lost and found: a mother and daughter on surviving teenage mental breakdown in the social media age by Christie Watson and Rowan Egberongbe
Patient and Public Involvement Work With Parents of Children With Life-Limiting Conditions and Bereaved Parents: A Rapid Systematic Review by Pru Holder, Bethan Page, Julia Hackett, Sarah Mitchell, Lorna K. Fraser
Having My Second Child Taught Me There’s No Such Thing As A “Normal” Birth by Nell Frizzell
Ultrasound imaging: A family's perceptions of a baby with terminal prenatal diagnosis by Tamarin Norwood
Reflect, collaborate, and listen by Rageshri Dhairyawan
‘You can let go now’: inside the hospital where staff treat fear of death as well as physical pain by Line Vaaben
Practice Research and Pregnancy: ‘Embryology Lessons’ by Sabina Dosani
The emotional effects on professional interpreters of interpreting palliative care conversations for adult patients: A rapid review by Jennifer A Hancox, Clare F McKiernan, Alice L Martin, Jon Tomas and John I MacArtney
Assisted dying in the UK: please don’t ignore the impact on children and young people by Lorna Fraser and Jonathan Downie (behind a paywall, see images below - shared with permission)
In November 2024, to mark Neve’s birthday, I also shared a list of resources, similar to today’s list. You can find these links in the post below. The links from April 2025 are all different to those from November 2024.
